PLEASE SAVE ME FROM MY ETERNAL SUFFERING.

I am very sorry to hear this.

However, beauty is not everything. Everyone will age and lose it at some point. You can still be an amazing person without it, and people who would think less of you aren't worth the trouble.

I hope you can find the strength to continue to live and find your way.

Oh no, I'm sorry!

I know it can be shocking to be diagnosed with something like that, but it'll be okay! Things like this are never as bad as you think they'll be.

Even if you do become "hideous", I doubt you think other "hideous people" should give up on life so by all means extend yourself the same compassion!

Besides, beauty is subjective anyway. Uni is right when she says it's not the most important thing! You can be a beautiful person in other ways. Possibly in more important ways!

author=pianotm
From what I understand, type 1 is the mildest form. From the sound of what I've read, I'm sure the doctors can keep it under control. KK, I doubt it's going to turn you hideous. Those are only the most extreme cases.

If piano's right, I'm sure you'll be fine! <3

It's very upsetting to have to deal with the loss of your appearance; it's an important part of most people's identities, and facing the prospect of a fairly significant deformity like this one must be super scary.

However, we are not our appearance. How you look does not change your inherent value as a human, nor your talents and skills. Many, many people with deformities thrive because they recognize this.

You should see if you can find any support groups for your condition. There are almost certainly other people who have gone through the same thing you're going through, and they should be able to help you get a handle on your prognosis and get your emotions dealt with.

This is absolutely a terrible thing to happen, but it's also something that doesn't have to define your life, and you don't have to suffer alone.

You know, there are literally billions of people who are perfectly healthy, of sound mind, and have "good genes" that tend to avoid the really nasty illnesses. But for some reason, the vast majority of them spend their lives doing mediocre things, accomplishing nothing of note, and dying in obscurity.
Meanwhile, Franklin Delano Roosevelt, the greatest man of the 20th century, was paralyzed from the waist down.

Sometimes it takes a critical health issue to prompt people into asking themselves "What am I doing with this life of mine?" Right now it feels like you're losing something forever, but you could also totally rebound and do something fantastic on a world historical scale while everyone else is idling away, taking their lucky stars for granted.

I got skintags after puberty. They are weird, and sometimes painful if they get twisted. But otherwise fine.

Link_2112
I didn't want to say anything and seem like a jerk, but I had a feeling this was the case. Crying suicide and death when you are upset is not 'under control'. You should find better ways of gaining sympathy. And while you're at it read 'The boy who cried wolf', or alternatively watch The Simpsons S4E07 "Marge gets a job".

Kids overreact. It's what they do. Melodrama and overreaction are totally expected.

Please save me from my eternal sexy demographics

author=Gourd_Clae
I'd hardly call it crying wolf. The visceral emotional reaction was real. Yeah, even when you're a kid emotions are real. Shocking I know! XD

Word, I'd probably have a similar reaction. Wouldn't post about it on a message board, personally, but honestly I'm AOK with someone feeling enough of a sense of trust and community that they come to us when they're upset.

I still remember the horror and panic as a kid when I had a weird reaction to some fabric my face had been on. I can't imagine how terrible it must feel to believe that your entire face and body are going to change in strange ways, forever. That's some existential horror shit there.